Friday, June 15, 2012

One more med to cross of the list...

As usual my body has decided to reject the new medication to treat my Behcet's. Cross Humira off the list. I'll make this as least sharing as possible for those of you who don't do well hearing about female problems...

I started the Humira on a Wednesday night. I couldn't push the button to give myself the injection. No matter how hard I tried I just couldn't do it. I knew what was coming. Yes, I can get a shot no problem, but injecting yourself is another matter. Thankfully Jacob, my 12 year old brother-in-law, had no problem hitting the button for me. In fact he was happy to do it. Not sure if it's because he got to give a shot or to get back at me for making him get shots at the doctor...

The good news is I didn't end up in the ER-yay! The bad news is it gave me my menstrual cycle. Here's the TMI- you'll get over it. I suppress my cycle due to my endometriosis and pelvic adhesion. They cause major pain when I have my cycle. Imagine laying in bed for 5 days straight when you get your cycle because it feels like someone is repeatedly punching you in the stomach. I'll stop there. At first I didn't think anything of it. Thought it was some fluke. Then it happened again the following week. Not normal. So we figured it was the Humira. There's a 1%-5% chance of patient's on Humira getting menstrual irregularity I'm told.

Next on my list is Enbrel. The prior authorization was approved. By the way, what a joke prior auths are. Those will be a different nights topic:) I called to activate my Enbrel card today so I can get it for either free or very cheap. Next was the call to the pharmacy with my Enbrel card number. For some reason the pharmacy is having problems running my card. Not sure if it's because they don't do it enough (as one pharmacist admitted via phone) or if there is something wrong with my activation, but I doubt that as I spoke with Enbrel twice to confirm the activation was working. Hopefully the pharmacy will call tomorrow with good news. A site note about Enbrel or the makers of it is they send out a sharps container for your needles once they are used. Do you know how great that is? Humira didn't do that. The drug companies make way too much money, every company should be required to do this by law.

Brief update on the lawyer. I chose Hoglund Law. She was very nice and well informed. They took on my case. I left actually feeling good. I didn't have to defend myself like most of us with Behcet's do over and over again. I did a brief update via phone today with another associate of theirs. I am now waiting for the next decision from disability which can take 3-5 months. Drawing a blank to the specific name of it at the moment.

On a side note, I managed to drop a heavy object on my foot Tuesday. More like the object fell off a shelf due to me moving something close by. Went to the doctor today to get an x-ray due to worsening symptoms. There might be one or two areas that could be fractured but it's hard to tell due to where the injury is. Waiting for the official read from the radiologist. Prob not fractured but better to be safe then sorry. Plus I got a stylish black surgical shoe from the doctor's office. You are so jealous aren't you? So that's where I'm at all around. Pain, swelling, and all that good stuff is the same. Headaches have been worse this week. Blah, blah, blah, right?

Good night everyone! I'm off to have my usual crazy dreams from the night sweats...

Good times, Good times...



The good times of today, are the sad thoughts of tomorrow.” Bob Marley