Sunday, November 18, 2012

Quick Update and They Joys of Being Sick...

Wanted to do a quick update. This is going to be nothing special. Perhaps even hilarious since I'm delirious from being sick...

Yes the joys of being sick. Some how I picked up a virus that turned into a double ear infection and the start of a sinus infection. It started with my typical crappy flare up symptoms, but the more serious ones- sore throat with lump in right side of my neck. I'm always fearful when this happens and it progresses into more because there is always the risk I will end up needing to go to the hospital. Why? Because when I first got sick it progressed so quickly (over night) and I should've been in the hospital but my damn stubbornness. Of course I didn't realize how sick I was back then. Anyways, I'm on antibiotics so all should be good soon. I wish I could say it gets better in a day or two but not when you have BD. The typical URI's, ear infection, sinus infections, etc. always last longer than they should ever be allowed to. In fact, it should be against the law for them to last longer than a week. Seriously, if you think having a cold for a week is bad, try getting Behcet's and having it last a month or more, plus all your other symptoms. It's pure torture.

Last time I had an ear infection? 2006 after my lapraoscopy. Funny how you remember that stuff right? I do not miss them at all! It's affecting my hearing-everything is muffled and crinkly sounding.

Here's what someone says to me: "Hi Chrissy, what are you up to today?"
Here's what I hear: "asdlfkasdh hdsfong sdkas phssss llgoasd."
Then I have to say "what?" about 3 times before I hear them correctly. Or I just make up what I think they said, which can make for some interesting conversations.

Hey everybody, guess what I'm still waiting for? You're never gonna guess...well maybe you will.
Yep, help from the prescription assistance program and MN Care. Awesome huh? I finally had to file a complaint to get help from the prescription assistance program in Allina. It has officially been a little over two months since I asked for help. I've spoken with my worker at least 3 times, each time her saying she's either mailing it to me or my doctor. I even had my doctor call her once! So finally I got someone who knows what they are doing and I received the paperwork Saturday. Thank you Rhonda for your help! Then there's the MN Care. I mailed my application in the second week of October (the beginning of the week), found out they didn't start processing it until October 22 and it takes 4-6 weeks to hear back. Not even sure what to say about this other than, can we get the MN Care workers more help please? I know I've been bitching about these things a lot lately but it's very frustrating. So there.

I started biofeedback therapy but it didn't go well because I was sick. So far it appears to be a lot like yoga- breathing and relaxing exercises. That stuff doesn't work so well when you are coughing and miserable. So will be going back in a couple weeks.

So this is the gist of what's going on. Hope everyone is as well as you can be!

Oh and by the way, did you know you can check in on facebook to have it say "is at feeling like death"?



"Difficulties are opportunities to better things; they are stepping stones to greater experience. Perhaps someday you will be thankful for some temporary failure in a particular direction. When one door closes, another always opens." ~Author Unknown