A while back someone asked what does Behcet's mean to me. Well...it means a lot of things. I went back to elementary school thinking, or maybe it was middle school, and decided to spell out good old Behcet's and came up with some of what it means to me. Of course there are a gazillion more I could add but I have to stop somewhere right? If you don't understand some of these, take a minute and think, and maybe you just won't get it because it's something that's different for each of us.
So...
What does Behcet's mean to me?
B- Boo, bitch, bad-ass body of mine, breaking, busted up, banged up, bandage, behaving badly, broken, beginning, bored, borrowed time, before, being, better, born, beast, brain fart, blood vessels, bedside manner
E- everlasting, evolving, eternal, empty, educational, eerie, error, experience, expect, emotional, emergency, energy, enough, ending, enraged, evil, eyes, explaining, expanding, exhausting
H- heat, how to use your body, hunger, headache, hope, horizon, Hulusi Behcet, hindrance, handicap, hole, how, hell, hard, ha ha, harsh, healthy, heart, horrible, hazard, help
C- control, cold, cunt, center, creative, craziness, can't, can, colorful, conflict, courage, communication, curious, compared, community, confused, concussion, cells
E- EEK!
T- taming the beast, theatrical, theories, tempting, taboo, talented, trapped, twisted, tarnished, trigger, thoughtful, thinking, total annihilation, terror, trust, temperature, treat the patient and not the textbook, travels, Too legit....Too legit to quit (go on and sing the song, you know you want to)
S- stupid, silly, sucker, sun no more, stinging, stolen, stranger, shock, shame, silence, story, still, symptoms, system, snickers (not the candy), science, silk road, sores, stoppable
I recently listened to a Podcast called The Guilty Feminist where they addressed nudity. Something discussed was body flaws- or that we are told they are flaws when they really aren't (good ol' society's thinking of how we should be). This started me thinking about how to relate this to Behcet's. Is Behcet's a flaw? Is it something we are born with and has been with us all along? Would thinking that Behcet's isn't a flaw make us better accept this disease and what it does to us and those around us? Would the acceptance phase be easier? Just something to think about...
"If you don't like something, change it. If you can't change it, change your attitude." ~ Maya Angelou
