Today is one of those days that just sucks all around. Aside from the usual symptoms I have (plus some), I went to the dentist thinking I had a cavity only to find out there is nothing wrong with the tooth. This means the pain is due to the inflammation of blood vessels in my mouth. Awesome.
Since getting sick, my tooth problems have worsened, which appears to be a common thing among BD'ers. I want to get partial dentures on the bottom but instead got a lecture on how much they suck and the reasons why I shouldn't get them. This was the second time I had been to this place- Elk River Family Dentistry. I was not impressed this time and will not be going back. Don't get me wrong, I'm sure he meant well but not well enough. I'd rather have dentures which would help eliminate my tooth pain but dentists only see $$$. I open my mouth and they think "Well she has about $10,000 more we could do to her." Think I'm wrong? Then why is it so hard to get dentures? With dentures, there's no money to make. With crowns, root canals, well...you do the math.
I left there thinking once again, a place that knows nothing about Behcet's. Stupid rare disease. It's hard to have faith in the health care system, dentists included, when you know more about your disease than the doctors. Imagine having to deal with this over and over again until you find a team of doctors who can help you. For me, after a year of struggles I finally have my team. Now I just have to find a dentist who's not out for the money but to genuinely help. My heart breaks for my Behcet's friends still struggling to find their team of doctors. I can't imagine going through this on a monthly basis if not more frequent. It's no wonder we feel alone with this disease and have to count on other BD'ers for support.
I'm at home currently thinking how dentures will ever happen for me. Perhaps I should just yank my teeth out myself. I could just get liquored up and well...you picture it. Ha ha. I've come to the reality that I will just have to lose one tooth at a time until I find a dentist who understands. My afternoon movie today? Yep, you guessed it- Reality Bites.
Yes my friends, another Behcet's reality was found today. And yes, it sucks.
"Reality bites... and doesn't let go." Author Unknown
That's me, no good team. I have Kaiser insurance, a HMO. My bf just put me on his PPO and it starts in October. I'm hopeful again. We have a trip to NYC planned and I'm going to try to get an appointment at the only Behcet's clinic in the USA. I'm so lucky to have this insurance. It would be impossible to live with BD if I was alone.
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