The Woes of Waiting...

It's been a while since the last post but for good reason. With winter approaching and the weather changing, it's been wreaking havoc on my body. I've been busy with doctor appointments as well and dealing with a flare up of symptoms. So where to start, where to start...

I started pool therapy last week. My body feels good when I'm in the water. Hot tubs relieve my joint pain. The therapist, Kim, is really nice. I'm her first Behcet's patient. Imagine that :) I told her I'd probably be her first and last since this is not something we typically do and given how rare the disease is. Anyways, we started slow, with things like walking back and forth and moving the legs. I could feel it the moment I got out. I came home and slept for 4 hours. The following 3 days were hell, if not longer. I'm going to give it one more shot but if it results as it did the first time, I will have to say no as I cannot tolerate being any more exhausted and feeling like crap than I already am.

I keep meaning to post about my toes. I've had a very odd thing happen at the end of August. I was out walking at the zoo for a prolonged time, which is not something that happens ever. In fact, I can only recall one other time where I was walking for so long and that resulted in vaginal bleeding. So what happened this time? Once I got home I realized how painful my toenails felt. My feet and toenails were throbbing, they actually felt bruised! What resulted in the following week was my big toenails turned black and blue. With the right side being the worse. The right side actually had crusted blood under it. And still does. The best that I've come up with after talking with other BD'ers is that this resulted from the trauma of walking and swelling. I can't even blame it on my shoes as they are not new and not old. Wish this was the case. So pictures are below.

I'm still waiting to hear on the rx assistance program for the Kineret. I'm also waiting to hear from MN Care on whether or not I qualify. I'm hoping it will be today. Or at least this week since November 1st would be the first day qualifying.

Something else I need to bring up that truly saddens me. There are some really sick people out there. I've recently learned there are people out there who fake diseases like this to get disability. They actually fake to join the groups. There was a person who did this in a very private BD group. I unfortunately cannot give much details other than this person was clearly faking. Between a picture and her story, anyone who bought it is a moron. Sorry, but when things don't add up you should question what's going on. I really wish I could have shared the pic but I cannot. It scares me that people are sick enough to do this. If only they knew what this disease was really like, they wouldn't being trying to fake it. I'll leave it at I hope this person gets the mental health they so clearly need.

So with this all being said, I will try to end it with a funny quote. I hope everyone is having a good day and check out the toe pics below :)

"Toe: A part of the foot used to find furniture in the dark”` Unknown -wish this was the case in my situation, sort of :)

The pic of the toe that is entirely bruised is the right one. I've done the best I can getting a photo of the blood crusted underneath the toe.