Sunday, April 1, 2012

Another sleepless night...awesome

Yes, another sleepless night. Awesome times. Those of us with Behcet's have these quite often but I shouldn't speak for everyone.

I wasn't always like this. I find that as my symptoms worsen so does my sleep.

My day started rather good considering it's been hell for the past two weeks with headaches and flare up of symptoms. Did a couple things around the house which may have put me into a larger flare up, but can't really say for sure especially with how I've been feeling lately. Around 3 PM I started feeling like crap. Fever, severe joint pain in knees, severe fatigue, and dizziness. I needed a nap. Sometimes naps make a huge difference. Unfortunately not today.

I awoke feeling worse than before. My mouth was killing me as another ulcer was developing along with vasculitis in the front lower area of my mouth. Dinner tasted funny. Getting out of bed and moving around was extremely difficult. The rest of my night was spent in bed watching movies. Tonight's choice was Pirates of the Caribbean. We had seen the Pirates exhibit last weekend at the Science Museum so I guess I'm still in a pirates mood:)

Fell asleep around midnight. Woke up around 2 AM and rolled around for an hour before succumbing to the fact that I'm not going to sleep anymore. Or at least anytime soon. Hence why I'm writing a blog at 4 AM. What made me finally get up is lovely breast vasculitis. Yes, inflammation of the blood vessels of the boobies. This is a newer symptom for me in the past couple month and let me tell you, IT HURTS! It's a throbbing and burning pain. Certain movements cause extreme pain. And no, I'm not posting pics. Boys and girls you will have to get your jollies elsewhere:)

The amusing part to my night was my cat, Milo, brought a smile to my face during this crappy time. He came to visit daddy (Jason) on the bed but daddy is sleeping, so mommy (me) scooped him up. He was loving the attention but anytime daddy would move, he'd run over and try to get him to pet him. I found this amusing, Jason not so much:)

I'm enclosing some pics of my mouth and my cat. The rest of my night will be dinking around on the Internet, watching King of the Hill, and trying not to wake Jason up. Hoping to a better nights sleep tomorrow.

And for those of you wondering, I do have medication to help me sleep but it didn't help tonight. I'm finding when I'm feeling so crappy it doesn't matter the amount of medication I take because nothing helps.

"Nothing cures insomnia like the realization that it's time to get up." Unknown




1 comment:

  1. I sympathize with the nightmare....I am awake too, and having all the same symptoms. Unblievable there is nothing that can be done.

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