My week was fairly good symptom-wise. I still had my usual aches, fatigue, and headaches (among other things). Some days better than others. There was one day where it was minimal. One of those rare days that only happen once every couple months for me. I didn't go out and party it up because the days following the feeling good are always hell. This is what I like to call the tornado effect. The nice weather before the storm, only apply it to your body. I was able to get out and walk that day, which was lovely. It was nice to feel the sun on my face, hear the birds chirp, and take in the views of nature. I was able to take some pics of the muskrats that have a home down by the lake. I can still close my eyes and enjoy the walk even though many days have passed since. Maybe you think I'm talking too much about this? Well too bad. You don't realize what you miss until it's gone. It's the little things people rush past because they are too busy caught up in the hustle and bustle. A walk in the sunshine, the laughter of another person, the clouds in the sky, the flowers blooming. Need I go on? The "stop and smell the roses" saying really means something.
What would a week be without dealing with some kind of medication problem for me? Heaven. That's what. I am now onto my millionth medication to try (I may be exaggerating a bit) but that's what it feels like some days. There are times when I want to give up trying meds since my body has decided it wants to be allergic to almost all medications. But then I think what if this one is the one that will get me back to normal? I only have about five more I can try before my list of possibilities runs out. This week it was a call from the pharmacy saying my copay for Humira is going to be $490. Yea, I'll get right on that. Maybe do a little prostitution and that should cover it. I'm joking people! Thankfully Humira has some patient card program that once you register with them your copay is somewhere around $5-10. One blow job ought to cover it. Once again, joking! Or selling myself short:) I registered with Humira and they say it will take 10 days before I get the card. Then I can call my pharmacy and they run the card number and boom, cheap medication. Is that even possible in the USA? Not usually. Before I can start my Humira I need to have a mantoux done. This is to test for tuberculosis if you are not familiar with the term. Just another pain in the butt thing to do and what makes this particular test difficult is needing to have the test read 48-72 hours after getting it administered. Why is this hard? Because I never know how I am going to feel.
That about sums up this past week give or take. I do want to say a special thanks to my dad's cousin Kathy Lundquist for taking the time to go to Tea Source and getting me peppermint tea. You rock Kathy! I am enjoying a cup of tea as I write this. Num Num Num is all I can say:)
I think I'll be back on track to writing more this week. I have several drafts I've started but need to finish. The quote I choose for this post is more my feelings of having to deal with trying medication after medication. I came across it earlier this week and love it. Of course you can apply it to every day life, especially every day Behcet's. I've also decided to throw in some pics of my muskrat friends for fun. And yes I'm up late as it's one of those days that my body is screaming at me in pain. Have a feeling I'll be up off and on tonight.
When the world says, "Give up,"
Hope whispers, "Try it one more time."
Author Unknown
Thanks for the shout out! It was my pleasure to send you the tea, any excuse to wander in to the Tea Source is good for me!
ReplyDelete--kathy