As I said before, I'm out on LOA from work due to worsening symptoms. My symptoms have all worsened, I've developed many new, and just feel like poo most days. Remember the Magical Grab Bag of Behcet's theory? I couldn't help but reach in that grab bag and pull out some new symptoms. Let me tell ya, it's been awesome. (sarcasm folks) I hope by now you've learned I am a very sarcastic person. I'm eventually going to have to stop giving you clues it's sarcasm.
While at the rheumy last Wednesday, she said the F word. Yes, that's right, Fibromyalgia. She thinks I might have a double diagnosis going on. I can't think of anything more fun than these two diseases thrown together. I can picture them dueling it out with my body as I type this. I hate to say "what's next" in fear of what the health god is gonna do to me. Dr. Grandits hasn't diagnosed me yet, but I imagine it's right around the corner.
I've had constant floaters in my eye for the past week. Seems like my little friends are here to stay. It's all good unless I start talking to them. Makes it hard to be on the computer, watch TV, and all that fun stuff. I can describe them as little black dots that obstruct your vision. Not to the point where you can't see but it's very annoying.
I've had some interesting things happen with blood vessels in my body this past week. I'm use to random bruising- a common thing among BD'ers. I can't even say it's from fun drunk random bruising...bummer. My right hand developed what I thought was a superficial blood clot after doing something strenuous (yea something I shouldn't have been lifting but there's that stubbornness in me to still try to live a normal life). Twenty minutes after this incident, I felt sudden sharp pain in my hand, looked down and there was a lump and a bruise forming. And no, I didn't hit my hand on anything. I put a warm washcloth on, which helped. The bump did go away within a couple days but the bruise took a good week to go away. I forgot to take a pic of this. Then there was the eye blood vessel deal (see other post). I also had a finger joint bruise show up this weekend. I've been having a lot of pain in my left pointer finger and right ring finger specifically. My left pointer finger was the one that got the bruise. Hopefully this isn't a warning of another disease developing.
This about sums up the past week along with my 3 doctors appointment post. As much as I wanted to post this last week, I just didn't have it in me. And yes, I still love my life and being me. It's just that some days are harder than others.
"Sometimes you're the windshield, sometimes you're the bug." Mark Knopfler
Hey Chrissy! I once heard someone say it was like looking through wax paper. That's what my issues do to me too. As for the sarcasm, you would be a great friend to Sheldon from Big Bang Theory - he always misses the sarcasm and needs to be told! Hahaha! I so hope you feel better soon. Sharon.
ReplyDeleteI still have some left over floaters, even though the uveitis itself has been quiet for a few years. I have this bird like thing that moves around in my and it looks like little bigs are swarming me ;) I STILL swat at them. They have been my little friends for 7 years. haha, some people think I am crazy.
ReplyDeleteI hope you can get some relief!!
Katie
My left pointer finger hurts all the time. I'm right handed, it doesn't make sense. Have you accepted you'll never feel like your old self. I cannot. I've spent months trying to kick the prednisone (I convinced myself that I didn't have BD and it was the prednisone that was making me sick), I'm down to a half milligram and voila, my first major flare since my diagnosis.
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